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Huge thanks for this video and sharing your story! I've just had my bowel resection surgery due to the same problem. My surgeon took out exactly 10cm from the small and large bowel. For me the epidural anesthesia was not that effective, I needed a huge amount of painkiller also. After 2 weeks my surgery I'm feeling much better, altough my belly feels kinda weird under the right side ribs. I think my bowel tries to find its new place inside or something. I really hope you're still in good condition. Wish you the best! Greetings from another Crohn warrior. :)

Thank you for sharing….my first appointment with my surgeon is rapidly approaching to go over the procedure and your video has been illuminating and has calmed my nerves considerably. My circumstance is bit different as I do not have Crohn’s disease but a inoperable polyp on my Ileocecal valve, thus requiring the resection. Thanks again!

No offense but you are able to eat... so you are not that sick

I have just had the same surgery I’m on day 4, how long did it take for you to start feeling normal again and the bloating and feeling sick to go away, I still struggle to eat how long did that last for you x

You look beautiful. Looking at you, one can not tell you have chrons. God bless you. I pray there is a breakthrough that helps you.

Hi Sally I want to thank you for your video. I was diagnosed with Crohn's in 2019 and have been on biologics since. However, my colonoscopy yesterday showed narrowing, scarring, and inflammation in my terminal ileum. They had already put a balloon in the ileocecal valve with my last colonoscopy in 21. My GI wants to do surgery in the same area as you. I'm nervous about it. Plus being away from work for so long. Still, I am also strangely calm 😊. Thank you for your detailed surgery journey. I'm so glad yours was successful and wonderful in the end. I hope to make a sound decision with my own journey. God bless you!

Hey Sally I have sent you a dm on insta x

You are a very brave girl.

Thanks so much for this and showing the injection. Really helps me if I'm diagnosed as terrified of needles.

Thanks! Our 15 yr old son has bowel surgery on Tuesday for his scarred areas. He was diagnosed with Crohn's 15 mos ago. This helps ys see what to expect. Thanks for sharing!

As someone who had their ileocecal valve and some intestines removed at birth due to a malrotation of my intestines that ruptured, as well as having numerous surgeries since then for stricturing of my intestines from scar tissue… my best advice for everyone is to fast often because fasting is great for reducing inflammation, stick to foods that are easy on your body, and drink lots of water! Tea is good too 😉

I have crohn too.

I had to have my large bowel removed last year so I have an ilyostomy and I hate it. It did , however, save my life as it’d was an emergency .

this is kinda how I feel all the time, and ive always been super underweight. Ive put it off for over a year thinking its just something I ate or because of my anxiety or something idek. How do I bring this up with my parents, it feels really embarrassing and the last couple times I asked to the doctor for stuff, it was mostly nothing.

I have a slight stomach pain my lower left side it gets worse a few hours after I eat something in dealing with it for almost 2 months an appointment with GI specialist is over 30 days out and I lost 70 pounds since Christmas😢

No u look lovely and beautiful

In the centre layer?

Do you have undigested food in stools during the disease period

Is diverticulitis part of this??

I will be getting this exact same surgery but to remove the pre-cancerous tumor instead. If you don’t mind me asking, do you still have some diarrhea these years later? Also, did you have issues with your B12 levels after or with absorption of other vitamins? Hope you are still feeling well🙏🏼

Thanks for sharing your story. How are you now? I had my ileum & ascending colon (the bit of colon the ileum joins on to) removed. It was due to something called an intussusception. Did they preserve your ileocacal valve do you know? They took mine away because the whole area was necrotic by the time they eventually took me back to theatre & diagnosed the issue. The lack of ileocaecal valve is causing the bacteria to backtrack into the remaining small bowel, which they can't fix because there is no valve to separate the small & large bowel. This is causing various deficiencies & nutrient inbalances, a lot of bloating & discomfort, hairloss, skin problems, kidney & liver problems, & I'm really underweight. My surgery was almost 20 years ago, but my health has only really started to suffer majorly in the last 6 years or so. I haven't been anle to find anything on youtube about not having an ileocaecal valve, but your video popped up in the search.

Thank you for this video. You are a warrior💪🏻

Drink organic kefir and organic yogurt , it will benefit your Crohn's . Also , to eat and drink various prebiotics and probiotics on a regular basis .

I am 17 and I am having this surgery soon. Thank you so much for this video. I found myself relating to you entirely. I also felt like surgery would be worst case scenario, and then a few months later I had a flare up and my Dr. decided on surgery. It was so sudden and scary. It’s also my ileum that is narrowing, which i’ve found out is quite common for Crohn’s. Thank you again.

My name is Sally and I was diagnosed with Crohn’s 1 year ago. I’m sure I’ve had it a lot longer than that as it took a while to diagnose it. I started meds. last year (Stelara), but something isn’t right. So….another colonoscopy this Friday to see if anything is amiss. Argh! Currently dealing with a flare up. , which sucks.

Thanks for telling your story! I was diagnosed with Chrons last year & today my doctor basically told me that I will be needing surgery to remove 12 cm. I’m happy to finally have surgery tbh & this video has helped me come to terms with it all. Thanks for going over it all!

Now I'm obsessed with frog cakes, Lol

Thank you for this. My wife is about to have this exact procedure and I'm wanting to learn as much as I can now so that I'm prepared to do everything I can!

hello ,, im from Bangladesh and have diagnosed crohns disease..i have seen almost all of your videos,, and through your travel vologs i got a lot of strength..thanks a lot! But why dont you upload more videos?

I love frog cakes SOOO MUCH but I can rarely get them but when they're available I 100% need to grab one

This is worse case scenario for me for having my appendix out. What has your diet and bowel movements been like since having surgery? Any nutrient deficiencies?

Hello lovely, sorry to bother just wondering if you could eat anything after surgery or not? I’m considering it highly

Please check out Zsofia Clemens on the paleo keto diet. There’s real hope if you’ll do the Jordan and Mikaela Peterson diet. Those alerts for the Intravenous additives and flask changes all through the night are a big pain.

I’ve had crohns for 7 years and had to go for surgery last week., it was hard as a 17 year old to process it … I’m feeling alot better now… I’ve been through remicade , humira , Stelara , many others meds but surgery was the last option .

I was born with it pass down from my dad

I am 70 years old and have had Crohns for 60 years. I am so proud of all you young people. I am sure will see a cure in the next few years. Hang in, I understand am pulling for all of you.

For me i also have partial seizures and high blood pressure...I was diagnosed with Crohn's when I was 20 and was getting symptoms 6 months before my 20th bday. Had it for 14 now. Used to be on Humira and those painful stomach injection for 11 years until I stopped doing it regularly and my antibodies refused the medication. The Dr. Wanted me to take Remicade but I refused as I have venephobia and don't want to take biologics. I haven't been on meds for a year so far and just had a colonoscopy & endoscopy. Everything seemed to be clean and normal. The only thing that scares me is that I had an MRI last December and inflammation showed in my small intestines...2 months ago I took blood work and everything was normal even my inflammation levels. So I'm not sure if I need to take meds as I'm thinking of taking Stelera injections. I definitely do get symptoms depending what I eat and have fatigue almost daily. When I wake up I usually have to be in bed for 2-3hrs until the tiredness goes away. I'd recommend Vitamin D3, Turmeric, Ginger, antioxidants, cucumbers, grapes. Would not recommend Fast foods, or Restaurant foods that serve heavy amounts of grease. Get your organic foods from Farmers Market, or the fields...better to grow your fruits and vegetables if there is space. Go to bed a little bit hungry and consume wine a few times weekly if 21 or depending on your country laws.

Banana Nana foe Fally.....

Thanks for this video, I am a male in my mid 50s I was diagnosed when I was 20 but only after there was significant damage from years of inflammation, unexplained fevers and infections- I required 2 bowel resections over the years and several other surgeries one of which almost killed me due to complications with the op, I have alway been embarrassed and reluctant to talk about my Crohn’s but it’s people like you that make more accepting of my condition. Thanks again and Wish for the best of health for you.

Did you have Diarhea after surgery?

What medication really worked for??

Fondant

Great video to normalise Chrons! I had a suprise diagnosis of fistulating Chrons in late 2020. Within a few months of diagnosis I spent Christmas in hospital having 70cm of bowel removed. Found this video as I’m yet to have a ‘normal’ bowel movement mainly down to the removal of the valve and it’s very frustrating to live with!

I found this UA-cam channel because I searched Living with crohns disease or something like that because I wanted to know more. I have a stomach pain and the doctors haven't figured out why yet. They have done lots of test but I have do more tests inkl. Rectoscopy 😳🙈🍑 They think it might be ulcerative colitis, crohns disease or just dyspepsia. I feel very anxious and scared 😞

Hey sally thank you for this video. I have had several test done and I am in so much pain right now. All test I have taken have came back negative and at this point I feel like I’m going crazy cause nobody understands how I feel.

Sally your dancing gave me life 😂🙏🏼

Thank you. Our son has Crohn's. He has been on a liquid diet for 2 months now, but still has a stricture. So he will be having surgery soon. He is 13. It has helped me to hear your story. God bless you.

Did they really let you eat sausage rolls 2 days later?

I am having a very hard time with the exact same surgery. I cant eat anything without pain. I have severe crohns left untreated since the age of 10. I'm 27 now. This is the worst thing I have ever had. I had an invasive expository surgery. About an 11in incision. Thankfully I was knocked out lol. But it is awefu

Going in for colonoscopy and endoscopy in few weeks